Get A-Head is a local support group that runs quarterly events held in the Outpatient Department at the Queen Elizabeth Hospital, Birmingham on the 1st Wednesday of February, May, August & November from 5pm -7pm. The group talk about things that have affected them personally and also work on a patient newsletter that is currently being produced twice a year.
Local support groups
There are many amazing local support groups operating across the country.
The group was set up in 2006. It now meets every 2 months in Macclesfield District General Hospital. For more information about the group, please contact Anne Baggs via firstname.lastname@example.org
The group meets approximately every 6 weeks. During meetings they discuss forthcoming events, details of NHS services and problems encountered by group's members. The group also hosts regular guest speakers. For more information about the group, please contact Carole via email@example.com
Facing Forward is run by the Leeds Macmillan Head and Neck Rehab Team, which consists of s Speech Therapist, Clinical Nurse Specialist, Dietitian and a Clinical Support Worker. This is a unique team which is part of a wider regional project evaluating the services available to patients following treatment completion.
Head and Neck Cancer Support Group is based in Leicester and meets once every month. Their services are mutually supportive, informative and educational. Fore information about the group, please contact George via GeorgeC.West@talktalk.net
The Patient and Carer Support Group is a support group for patients and carers who meet to chat, share experiences and support each other. The group meets on the first Friday of every month. Anyone in and around the Merseyside region is more than welcome to join.
Rotary Support Groups meets bio-monthly in Ashford, Kent and provides support for head and neck cancer patients and their carers. The group enjoys social outings while providing support to one another. Topics for discussion are patient led, with the involvement of other health care professionals when requested.
Ashford Laryngectomy Club is based in Ashford, Kent. The group meets bio-monthly and provides support for patients who have undergone laryngectomy and their carers. The group has introcuded a buddy system which is very successful and benefits many patients.
Head and Neck Social Group is a support group for all head and neck cancer patients. The group is run by the members for the members with assistance from the health professionals. The Head and Neck Social Group provides valuable information and social support for patients, their families and carers. The group meets the first Wednesday of each month at 7pm at the Luton Rugby Club.
QUEST is a support group for patients who have had thyroid cancer. The group meets every other month at Queens Hospital, Romford. Existing members range from newly diagnosed to those whose experience was a number of years ago.
CHINS is a support group for head and neck cancer patients in the Barking Havering and Redbridge area. The meetings are held once a month at Queens Hospital, Romford.
About Face is a support group based in Poole that aims to provide support for people who have head and neck and cancer. The group has available a dedicated group of individuals who have experienced head and neck cancer for themselves and offers one to one opportunities for patients and their loved ones to meet and talk at their own pace.
Heads Together is a support group for all head and neck cancer patients and their carers and family members. Although the group meets every 2 months in the north of Sheffield, smaller subgroup meetings are held every 2 weeks in central Sheffield for socialising. Heads Together offers extra professional and friendly support from the healthcare team and a variety of visiting speakers.
The group aims to provide a friendly and welcoming place for people affected by mouth and throat cancer who want to get support and infornation. It meets from 4pm to 5:30pm on the 2nd Tuesday of the month in the Lynda Jackson Macmillan Centre at Mount Vernon Cancer Centre. There is no need to book, you can just drop in. Carers are always welcome to attend.
The group aims to provide a friendly and welcoming place for people affected by mouth and throat cancer who want to get support and infornation. It meets from 4pm to 5:30pm on the 2nd Tuesday of the month in the Post Graduate Centre at Mount Vernon Cancer Centre. There is no need to book, you can just drop in. Carers are always welcome to attend.
Rotherham Head and Neck Cancer Support Group is a support group for people, carers & relatives living with head and neck cancer in the surrounding area. It started as a support group for laryngectomees but it now welcomes new members with any kind of head and neck cancer.
Speak Easy is a support group for head and neck cancer patients in Lanarkshire, Scotland. It has a very active group of Laryngectomees who meet monthly but for the past for years it has also warmly welcomed any head and neck cancer patients. Speak Easy provides information, support, friendship and short respite breaks for all its members.
North Staffordshire Laryngectomee Support Group (Lost Chord Club) is a member of the National Association of Laryngectomee Clubs. The most important puropse of the organisation is to inform laryngectomees of the literature and support groups that are available to assist the recovering laryngectomee and their family, and to give support and encouragement.
The Head Cases provides support to patient, carers and relatives who are living with head and neck cancer, and want to meet and share experiences and ideas in a relaxed supported environment.
Heads Up was established in January 2010 to offer information and support to head and neck cancer patients, their relatives and carers in Wolverhampton area. The group provides a safe environment where those with cancer can share common concerns and strenghten their ability to adjust to life with cancer. Heads Up meets the third Tuesday of every month from 2pm to 4pm.
The Plymouth Laryngectomy Club (PLC) aims to offer support and understanding to the Laryngectomees and their families in the Plymouth area. The group is also open to any other Head and Neck Cancer patients who are more than welcome to join and become Club Members.
HNChelp began life as a Laryngectomee Support Group but has evolved to include any head and neck cancer patient. The group is based in Chesterfield, but it supports patients from as far away as Sheffield and Nottingham. HNChelp organises social activities, but also strongly subscribes to the view that patients supporting patients offer insights that clinicians cannot provide.
The Swallow Group was formed by cancer patients to help and support fellow sufferers and their carers. It is known as 'The Swallows' because of difficulty a lot of people have with swallowing. It provides one to one or group support to help each other and anyone else who is affected, directly or indirectly, by head and neck cancer.
Heading Forward offers support to head and neck cancer patients, their families and carers. The group meets every two months on Thurday evenings from 6.30 pm to 8.00 pm at Brimington Common Methodist Church, Manor Road, Brimington Common, Chesterfield, S43 1NU.
Headstart is a local support network for patients, carers and staff, and is open to anyone who has undergone treatment for head and neck cancer.
ACCOI's email information group members share information and hope. All issues are discussed in an atmosphere of support. Current research, clinical trials, cancer facilities, alternative medicine, organizations that help with expenses for cancer treatment and other information relevant to Adenoid Cystic Carcinoma.
They are committed to offering a range of practical, social and emotional support, all free of charge to people whose lives have been affected by cancer in the Bradford Metropolitan District of West Yorkshire.
The international support network for people with facial disfigurement, their families, friends and professionals
Heads2gether provides information and support for head and neck cancer patients, their carers, relatives and friends from from the John Radcliffe Hospital and The Radcliffe Infirmary in Oxford and The Royal Berkshire Hospital in Reading.
Macmillan has developed Cancer Information and Support Centres which are now open to the public. A member of staff or trained volunteer will guide you through the information and support options available. Find a centre near you.
If you or someone close to you has been diagnosed with mouth cancer and you are finding it difficult to cope with the impact of the disease, you may find it helpful to talk to a specialist cancer counsellor about your fears and hopes.
Patient Pathway DVD on their website
Head and Neck Dorset Support (HANDS) has been newly established in Dorset to give support, information and advice to patients and their families who have experienced head and neck cancer within the Dorset Cancer Network area
Peterborough Head and Neck Cancer Support Group is based in the Peterborough area and reaches out to a wide area of this region. We offer support, friendship and information to other patients, friends and family affected by head and neck cancer. The group meet monthly and we also make home and hospital visits pre and post operation.
Meeting place Wakefield
Patients and their families welcome at Bradford Cancer Support Centre over the road from BRI every 2nd Friday of each month between 12 - 2 pm Macmillan Nurse: Sarah Cost